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ComfortCare Homes Wichita Blog

Why I Walk – Pam Crawford

Wednesday, September 13th, 2017 2:51:46 PM
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I walk for my Father who had Parkinson’s Dementia and for my Grandmother.

My memories of my grandmother as a Pastor’s wife are full of feeding us gum and candy bars in church to keep us kids quiet. She loved to cook and believed any ailment you had was remedied by food. Every one of us grandkids knew we were loved immensely and enjoyed the twinkle in her eye and laughter as she watched us eat together as a family. Memories of picking veggies from the garden and her canning – always remember her homemade Apple Butter.

Last but not least, was her legacy to us of her beautiful crocheted blankets, tablecloths, baby hats, doilies, etc. This was my fondest memory, of watching her sit for hours to make beautiful things that made others smile. It was extremely difficult to realize she could no longer remember how to crochet. Those treasures I keep close to my heart as does my daughter now that Grandma is no longer with us.

I struggled as my Grandmother began to lose her memory over time. I knew Grandma was still there even when she could no longer live at home. When her natural inhibitions no longer worked because of this illness, it was difficult to watch. Nevertheless, we wanted her to know she was loved in any way that we could. Watching my family struggle with this illness also wasn’t easy. You can’t argue with someone with this illness and when she began to live in her past thinking it was the present, it was difficult to watch my family try to persuade her. While we all learned over time the right way to react and interact, those struggles are so real. I am comforted to know that we had each other through the entire journey with my Grandmother.

My father’s journey with Parkinson’s dementia was different and yet equally as challenging. When you know someone who was so full of life and opinions, with a contagious unique laughter who served his country and loved his God with all his heart and then…….you see loss of independence in every facet of life, you cry a bit inside each time knowing that this could be you one day.

Watching him lose his ability to get his words out, lose his strength to sing and praise in church and even eat much, it hits your heart hard. What was so sweet to watch was putting on music he loved or having musicians come to play old hymns, he could still tap his foot and use his hands to show you that it was soothing to him. Even when he couldn’t eat much, you knew a soft Reeses peanut butter cup would offer him some enjoyment and of course, we all have his love of Reese to take with us.

There is not a lot in the way of medications to truly help a person with dementia who develop behavioral challenges. It pained me to see him have to be so medicated at times to finally allow him some inner peace. Watching his struggle to the very end until he took his very last breath, knowing that he was surrounded by family who sang/talked to him until that very last moment…..is another reason I walk.

Though I am so grateful we all had each other – there is still so much more to be discovered to help those who suffer with the illness and their families who have to endure along the way.

Help Pam by making a donation to the Comfort Crusaders Team – Click here to make a donation.

For more information about The Walk to End Alzheimer’s and how you can get involved, please visit our event page here. If you have any questions, feel free to call our office at 316-267-7333.

                

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